The Hainan Beatitudes Foundation held its first annual meeting in Haikou on March 12, launching the first non-governmental project of caring for children with thalassemia.
Thalassemia is an inherited blood disorder which causes decreased hemoglobin production, as accelerated hemolysis shortens the life span of red blood cells. Globally, 100,000 babies are born with the disease every year. According to statistics, 4.83% of the worldwide population carries globin gene variants with some silent carriers. In Hainan, the proportion is 15%, compared to 55% in minority areas.
In the project for children with the disease in Hainan Province, the birth rate of these special children can be reduced by the publicity of premarital examination, obstetric abdominal examination and prenatal screening.
Liu Shifu, a Hainan native, has donated blood 110 times since 2001. He said, "The 20 years of blood donation proves that I’m living happily and healthily. There are more than 700 children affected by the disease in Hainan with a blood shortage, so I insist on donating blood all year round. To supply a year of blood transfusion to a child suffering from the disease who needs 800 ml of blood in one month, 18 people need to donate 400 ml four times a year.”
In the event, representatives of assisted students, the disabled and patients with thalassemia came to express their gratitude to the foundation.
Established in 2014 and registered with the approval of the provincial department of civil affairs, the faith-based Beatitudes Foundation is a provincial public welfare organization with the United Front Work Department of the Hainan Provincial Party Committee as the business director and guidance unit. It mainly focuses on the four major areas covering education, medical care, culture and environmental protection, setting up public welfare agencies such as charity stations in many places throughout Hainan.
- Translated by Abigail Wu
2022年3月12日，海南八福公益基金会第一届年会在海口召开。海南首个民间“关爱地中海贫血公益项目”启动。
“地中海贫血”（简称“地贫”）是一种遗传性溶血性贫血疾病，因遗传基因缺陷导致合成血红蛋白异常，进而红细胞寿命缩短、破坏加速，引起进行性溶血性贫血。全球每年有十万婴儿诞生时就已患有地中海贫血， 海南地中海贫血发生率较高。统计数据表明，全球人口地贫基因携带率约为4.83%，而海南地贫携带率约为15%，其中少数民族地区地贫携带率高达55%。
此次海南首个民间“关爱地中海贫血患儿公益项目”启动致力于关爱地贫患儿，加大宣传婚检、孕检和产前筛查，尽可能地降低地贫患儿的出生率。海南献血达人刘仕富老师从2001年就加入无偿献血队伍，至今已有20年，总共无偿献血110次，他说“20年的献血是我健康并快乐着的证明！海南地贫患儿有700多名，所以供血极其紧张，这也是我常年坚持献血的主要原因。一个地贫患儿一个月就需要800毫升的血，也就是说，需要18个人每年献血4次，每次献血400毫升，才能保障一个地贫患儿一年的输血量。
受助学生代表、残疾人代表、地中海贫血症患者代表也来到现场，表达了他们对八福公益的感谢，
海南八福公益基金会成立于2014年，由海南省民政厅批准注册，海南省委统战部作为业务主管和指导单位，是海南省级基金会公益组织。八福公益基金会致力于推动海南公益事业发展，主要聚焦于教育、医疗、文化、环保四大领域，在海南多处设立爱心驿站等公益实施机构。 http://www.fuyinshibao.cn/article/index/id/61490
http://www.fuyinshibao.cn/article/index/id/61489
海南八福公益基金会年会上，海南首个民间“关爱地中海贫血公益
The Hainan Beatitudes Foundation held its first annual meeting in Haikou on March 12, launching the first non-governmental project of caring for children with thalassemia.
Thalassemia is an inherited blood disorder which causes decreased hemoglobin production, as accelerated hemolysis shortens the life span of red blood cells. Globally, 100,000 babies are born with the disease every year. According to statistics, 4.83% of the worldwide population carries globin gene variants with some silent carriers. In Hainan, the proportion is 15%, compared to 55% in minority areas.
In the project for children with the disease in Hainan Province, the birth rate of these special children can be reduced by the publicity of premarital examination, obstetric abdominal examination and prenatal screening.
Liu Shifu, a Hainan native, has donated blood 110 times since 2001. He said, "The 20 years of blood donation proves that I’m living happily and healthily. There are more than 700 children affected by the disease in Hainan with a blood shortage, so I insist on donating blood all year round. To supply a year of blood transfusion to a child suffering from the disease who needs 800 ml of blood in one month, 18 people need to donate 400 ml four times a year.”
In the event, representatives of assisted students, the disabled and patients with thalassemia came to express their gratitude to the foundation.
Established in 2014 and registered with the approval of the provincial department of civil affairs, the faith-based Beatitudes Foundation is a provincial public welfare organization with the United Front Work Department of the Hainan Provincial Party Committee as the business director and guidance unit. It mainly focuses on the four major areas covering education, medical care, culture and environmental protection, setting up public welfare agencies such as charity stations in many places throughout Hainan.
- Translated by Abigail Wu
Hainan Faith-Based Foundation Launches Project Caring for Thalassemisa
